The Barth Syndrome Foundation's 2012 Conference was hailed as an outstanding success by the patients with Barth syndrome, family members, and the clinicians and researchers who braved Tropical Storm Debby to attend. The conference included 44 individuals with Barth syndrome, their families, and nearly 50 physicians and researchers to hear about the progress made in this field. In all, over 330 people attended this seminal event a new record.
In the current October issue of Congenital Cardiology Today there is an article on our recent International Scientific, Medical & Family Conference on Barth syndrome. Congenital Cardiology Today is the only worldwide monthly publication exclusively serving pediatric, congenital / structural cardiologists, adult cardiologists that focus on congenital/structural heart disease, and congenital / structural heart surgeons. Read the fully article, Outstanding Conference on Barth Syndrome Defies Tropical Storm Fury.
Read the full article, Outstanding Conference on Barth Syndrome Defies Tropical Storm Fury.