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The only organization dedicated to saving lives around the world through education, advances in treatments, and finding a cure for Barth syndrome: a life-threatening genetic, multi-system disorder mostly affecting males.

August 29, 2025
byBarth Syndrome Foundation

The Barth Syndrome Foundation (BSF) extends our sincere appreciation to FDA leadership for meeting with our community last week and hearing firsthand the devastating reality of a Barth syndrome diagnosis.

August 18, 2025
byBarth Syndrome Foundation

The Barth Syndrome Foundation (BSF) acknowledges Stealth BioTherapeutics’ (Stealth) announcement today that it has resubmitted its third New Drug Application (NDA) for elamipretide, the only therapy in late-stage development for Barth syndrome, a devastating, ultra-rare, mitochondrial disease.

  • Barth Syndrome Foundation Family Services is a caring community offering vital information and credible resources.

  • Barth Syndrome Foundation is the worldwide hub of medical knowledge about Barth syndrome and encourages its progress.

  • Barth Syndrome Foundation is a global facilitator for advancing understanding of and developing treatments for Barth syndrome.

  • Keep up-to-date on the Barth Syndrome Foundation's latest news.

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