Your generosity is changing lives.
This year, donor support helped secure the first-ever regulatory approval of a treatment for some individuals with Barth syndrome. This is a historic milestone that is decades in the making. Your donations funded advocacy: testimony to FDA regulators, mobilizing physician networks, creating this proof of real progress.
But our work continues. We aim for a world where all families affected by Barth have access to a range of safe, affordable, and effective treatments. Every gift you make powers continued advocacy, research that brings breakthroughs, and direct support for families when they need it most.
Most importantly? Your support proves that our collective power is stronger than Barth syndrome.
Join us today.
Barth Syndrome Foundation is a global facilitator for advancing understanding of and developing treatments for Barth syndrome.
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