The Barth Syndrome Foundation’s (BSF) international Scientific and Medical Advisory Board (SMAB) is a dedicated team of researchers and clinicians who generously donate their time and expertise to advance our mission. These professionals are critical partners in driving #BarthPROGRESS through groundbreaking research and improved care.

The Barth Syndrome Foundation is thrilled to announce it has been awarded a grant from Cycle 3 of the Chan Zuckerberg Initiative’s (CZI) Rare As One Project. The CZI Rare As One Project supports and unites patient-led organizations working to advance the rare disease field by strengthening communities, building capacity, and promoting collaboration.