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X-WR-CALDESC:Part 2 of Global Genes’ Data DIY builds a common understanding
  of the rights we have as data owners and our responsibilities as data ste
 wards. Led by experts in data collection collaboration agreements\, learn 
 how to develop a governance plan for your program that includes key elemen
 ts such as\, defining objectives\, identifying stakeholders\, building a t
 eam and providing informed consent. Shelley Bowen and Emily Milligan share
  the evolution of the BRR registry over the years. Shelley will share less
 ons learned about enrollment\, diagnostics and natural history of disease\
 , and Emily will describe the business of registries and clinical trial de
 sign. Watch the workshop live here! Emily and Shelley present at 3:30 pm E
 ST.   A recording of this workshop will be available on the registration p
 age on July 25th\, 2019.
X-WR-RELCALID:7fc701fcf71ee433f03dccb5866702e1
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DTSTART:20181104T020000
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RDATE:20191103T020000
RDATE:20201101T020000
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DTSTART:20190310T020000
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BEGIN:VEVENT
UID:714e3ae9-1e8f-48e5-a7e3-b8cb289dce33
DTSTAMP:20260429T063454Z
DESCRIPTION:Part 2 of Global Genes’ Data DIY builds a common understanding 
 of the rights we have as data owners and our responsibilities as data stew
 ards. Led by experts in data collection collaboration agreements\, learn h
 ow to develop a governance plan for your program that includes key element
 s such as\, defining objectives\, identifying stakeholders\, building a te
 am and providing informed consent. Shelley Bowen and Emily Milligan share 
 the evolution of the BRR registry over the years. Shelley will share lesso
 ns learned about enrollment\, diagnostics and natural history of disease\,
  and Emily will describe the business of registries and clinical trial des
 ign. Watch the workshop live here! Emily and Shelley present at 3:30 pm ES
 T.   A recording of this workshop will be available on the registration pa
 ge on July 25th\, 2019.
DTSTART;TZID=America/New_York:20190718T000000
DTEND;TZID=America/New_York:20190718T235900
LOCATION:Washington Marriott Georgetown\, 1221 22nd St NW\, Washington\, DC
  20037
SUMMARY:Global Genes Data DIY Workshop: Data Trusts\, Governance and Collec
 tion Platforms
END:VEVENT
END:VCALENDAR