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X-WR-CALDESC:RARESUMMIT19 IS A 1 DAY SUMMIT FOCUSING ON PATIENT-CENTRICITY 
 IN RARE DISEASE PROGRESS\nWhat if?\n\nWhat if we were able to share inform
 ation with the power to revolutionise the current rare disease landscape? 
 What if we could provide solutions to patients now\, answering their press
 ing questions about their disease\, care\, and treatment? What if we could
  ensure that patients and advocates played an equal and vital role in the 
 development of drugs\, assistive technologies and healthcare? Rare disease
  patients and their families are tired of waiting for answers and the slow
  pace of change. They want to be involved and share their lived experience
 s to help companies\, researchers and healthcare professionals find answer
 s and solutions. Hear from\,  learn from and engage in cross-sector activi
 ties with a range of stakeholders: patients\; patient advocacy groups\; re
 searchers\; health care professionals and companies who are leading the wa
 y in pioneering partnerships to accelerate change.\n\nJoin us at the Wellc
 ome Genome Campus: a hub of life-changing science. We think it’s the perfe
 ct venue to make progress for rare diseases.
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TZNAME:EST
DTSTART:20181104T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20191103T020000
RDATE:20201101T020000
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TZNAME:EDT
DTSTART:20190310T020000
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
RDATE:20200308T020000
RDATE:20210314T020000
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BEGIN:VEVENT
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DTSTAMP:20260429T044947Z
DESCRIPTION:RARESUMMIT19 IS A 1 DAY SUMMIT FOCUSING ON PATIENT-CENTRICITY I
 N RARE DISEASE PROGRESS\nWhat if?\n\nWhat if we were able to share informa
 tion with the power to revolutionise the current rare disease landscape? W
 hat if we could provide solutions to patients now\, answering their pressi
 ng questions about their disease\, care\, and treatment? What if we could 
 ensure that patients and advocates played an equal and vital role in the d
 evelopment of drugs\, assistive technologies and healthcare? Rare disease 
 patients and their families are tired of waiting for answers and the slow 
 pace of change. They want to be involved and share their lived experiences
  to help companies\, researchers and healthcare professionals find answers
  and solutions. Hear from\,  learn from and engage in cross-sector activit
 ies with a range of stakeholders: patients\; patient advocacy groups\; res
 earchers\; health care professionals and companies who are leading the way
  in pioneering partnerships to accelerate change.\n\nJoin us at the Wellco
 me Genome Campus: a hub of life-changing science. We think it’s the perfec
 t venue to make progress for rare diseases.
DTSTART;TZID=America/New_York:20190923T000000
DTEND;TZID=America/New_York:20190923T235900
LOCATION:Wellcome Genome Campus Hinxton\, Cambridgeshire CB10 1SA
SUMMARY:RAREsummit2019
END:VEVENT
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