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X-WR-CALDESC:About this event\nJoin the National Organization for Rare Diso
 rders (NORDⓇ)\, Critical Path Institute (C-Path)\, and the US Food and Dru
 g Administration (FDA) for a special webinar on the Rare Disease Cures Acc
 elerator-Data and Analytics Platform (RDCA-DAP)\, a collaborative project 
 with C-Path\, NORD\, and the FDA. RDCA-DAP is an integrated database and a
 nalytics hub that is designed to be used in building novel tools to accele
 rate drug development across rare diseases.\n\nThis webinar will explain t
 he RDCA-DAP and provide reasons why your organization may want to engage\,
  instructions on how to submit data to the platform\, and information on h
 ow such data will be used and shared. NORD\, C-Path\, and FDA will be avai
 lable to answer specific questions about the project. This webinar is aime
 d primarily at patient organization leaders and their research/science off
 icers\, though all are welcome to join. For more information on RDCA-DAP\,
  please visit the C-Path website.\n\nBackground\nNORD hosts webinars on cu
 rrent events\, news\, resources\, programs and new opportunities available
  to our community. We invite experts as guest speakers on topics of intere
 st to the rare community such as medical education\, federal legislation\,
  state advocacy\, awareness raising\, research and clinical trials\, regis
 tries\, natural history studies and more.
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X-WR-TIMEZONE:America/New_York
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DTSTART:20191103T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20201101T020000
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TZNAME:EDT
DTSTART:20200308T020000
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
RDATE:20210314T020000
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BEGIN:VEVENT
UID:382b7ae5-5a8c-49b8-9ba8-e40b9efbc405
DTSTAMP:20260428T203912Z
DESCRIPTION:About this event\nJoin the National Organization for Rare Disor
 ders (NORDⓇ)\, Critical Path Institute (C-Path)\, and the US Food and Drug
  Administration (FDA) for a special webinar on the Rare Disease Cures Acce
 lerator-Data and Analytics Platform (RDCA-DAP)\, a collaborative project w
 ith C-Path\, NORD\, and the FDA. RDCA-DAP is an integrated database and an
 alytics hub that is designed to be used in building novel tools to acceler
 ate drug development across rare diseases.\n\nThis webinar will explain th
 e RDCA-DAP and provide reasons why your organization may want to engage\, 
 instructions on how to submit data to the platform\, and information on ho
 w such data will be used and shared. NORD\, C-Path\, and FDA will be avail
 able to answer specific questions about the project. This webinar is aimed
  primarily at patient organization leaders and their research/science offi
 cers\, though all are welcome to join. For more information on RDCA-DAP\, 
 please visit the C-Path website.\n\nBackground\nNORD hosts webinars on cur
 rent events\, news\, resources\, programs and new opportunities available 
 to our community. We invite experts as guest speakers on topics of interes
 t to the rare community such as medical education\, federal legislation\, 
 state advocacy\, awareness raising\, research and clinical trials\, regist
 ries\, natural history studies and more.
DTSTART;TZID=America/New_York:20200506T130000
DTEND;TZID=America/New_York:20200506T140000
LOCATION:
SUMMARY:NORD Webinar: What you want and need to know about the Rare Disease
  Cures Accelerator - Data and Analytics Platform (RDCA-DAP)
END:VEVENT
END:VCALENDAR