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X-WR-CALDESC:GENE THERAPY WEBINAR: OCT 15 12 PM EDT\nRegister now for next 
 week's gene therapy webinar with Barry Byrne MD\, PhD\, Christy Pacak PhD 
 and Todd Cade PT\, PhD.\nGene therapy targeting Barth syndrome holds great
  promise for our community yet has potential limitations and presents sign
 ificant scientific\, financial\, manufacturing and regulatory challenges t
 hat first must be overcome. \nJoin this important discussion to:\n• Unders
 tand the basic concepts as well as some of the complexities of gene therap
 y\, and how it could be applied as a potential treatment for Barth syndrom
 e\;\n• Be informed on the last 24 months of progress in the field of gene 
 therapy\, particularly as a specific application for treating Barth syndro
 me within the Powell Center\;\n• Explore the unique challenges related to 
 the application of gene therapy in an ultra-rare and multi-system disease 
 such as Barth syndrome.\nAll are welcome\; advance registration is require
 d!
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X-WR-TIMEZONE:America/New_York
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TZID:America/New_York
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TZNAME:EST
DTSTART:20191103T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20201101T020000
RDATE:20211107T020000
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TZNAME:EDT
DTSTART:20200308T020000
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
RDATE:20210314T020000
RDATE:20220313T020000
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BEGIN:VEVENT
UID:cc57fdb0-3d69-44c2-be78-13a6842389b7
DTSTAMP:20260428T134359Z
DESCRIPTION:GENE THERAPY WEBINAR: OCT 15 12 PM EDT\nRegister now for next w
 eek's gene therapy webinar with Barry Byrne MD\, PhD\, Christy Pacak PhD a
 nd Todd Cade PT\, PhD.\nGene therapy targeting Barth syndrome holds great 
 promise for our community yet has potential limitations and presents signi
 ficant scientific\, financial\, manufacturing and regulatory challenges th
 at first must be overcome. \nJoin this important discussion to:\n• Underst
 and the basic concepts as well as some of the complexities of gene therapy
 \, and how it could be applied as a potential treatment for Barth syndrome
 \;\n• Be informed on the last 24 months of progress in the field of gene t
 herapy\, particularly as a specific application for treating Barth syndrom
 e within the Powell Center\;\n• Explore the unique challenges related to t
 he application of gene therapy in an ultra-rare and multi-system disease s
 uch as Barth syndrome.\nAll are welcome\; advance registration is required
 !
DTSTART;TZID=America/New_York:20201015T120000
DTEND;TZID=America/New_York:20201015T130000
LOCATION:https://barthsyndrome.zoom.us/webinar/register/WN_j20FX1iGQ5ObMTZ_
 5A1ehQ
SUMMARY:Save the Date: Gene Therapy Webinar
END:VEVENT
END:VCALENDAR