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UID:f33077ba-b810-48f0-972f-470ec2e453d9
X-WR-CALDESC:Katelyn Laws will share opportunities for our community to bec
 ome involved in advocacy initiatives through Every Life Foundation. One op
 portunity is through rare disease advocacy through Rare Across America. Th
 e second opportunity is through EveryLife Foundation Young Adult Represent
 atives (YARR) Leadership Academy.\nKatelyn Laws serves as the Rare Disease
  Legislative Advocates (RDLA) Program Coordinator at the EveryLife Foundat
 ion for Rare Diseases. Before coming to the EveryLife Foundation\, Katelyn
  attended American University where she received her Master’s degree in Pu
 blic Policy and worked as a research assistant.
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X-WR-TIMEZONE:America/New_York
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TZNAME:EST
DTSTART:20201101T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20211107T020000
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DTSTART:20200308T020000
TZOFFSETFROM:-0500
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RDATE:20210314T020000
RDATE:20220313T020000
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BEGIN:VEVENT
UID:df75b62e-483b-4045-99a4-1731d1e4e733
DTSTAMP:20260428T091853Z
DESCRIPTION:Katelyn Laws will share opportunities for our community to beco
 me involved in advocacy initiatives through Every Life Foundation. One opp
 ortunity is through rare disease advocacy through Rare Across America. The
  second opportunity is through EveryLife Foundation Young Adult Representa
 tives (YARR) Leadership Academy.\nKatelyn Laws serves as the Rare Disease 
 Legislative Advocates (RDLA) Program Coordinator at the EveryLife Foundati
 on for Rare Diseases. Before coming to the EveryLife Foundation\, Katelyn 
 attended American University where she received her Master’s degree in Pub
 lic Policy and worked as a research assistant.
DTSTART;TZID=America/New_York:20210119T160000
DTEND;TZID=America/New_York:20210119T170000
LOCATION:https://barthsyndrome.zoom.us/j/93645480231
SUMMARY:EveryLife Foundation for Rare Diseases
END:VEVENT
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