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X-WR-CALDESC:Join the National Organization for Rare Disorders (NORD)\, alo
 ng with The ALS Association\, Cystic Fibrosis Foundation and Muscular Dyst
 rophy Association to continue the conversation about vaccines during a spe
 cial webinar featuring leaders from the US Food and Drug Administration (F
 DA) and the Centers for Disease Control and Prevention (CDC). \n\nThis web
 inar will address the:\n° Effectiveness of the vaccines for immunocompromi
 sed individuals\;\n° Timeline for vaccine authorization for children under
  the age of 12\;\n° Future needs for booster shots or vaccine passports\, 
 and more.\n\nQuestions from members of the rare community will be collecte
 d during the registration period and addressed in the discussion. For thos
 e unable to join on June 16\, this webinar will be recorded and sent to al
 l registrants for on-demand viewing.\n\nThis webinar is intended for patie
 nts\, caregivers\, advocates and the general public.\n\nSPEAKERS\n° Dr. Ja
 net Woodcock\, Acting Commissioner\, FDA\n° Dr. Peter Marks\, Director\, C
 enter for Biologics Evaluation and Research\, FDA\n° Dr. Anne Schuchat\, P
 rincipal Deputy Director\, CDC\n° Dr. Sara Oliver\, Epidemiological Intell
 igence Service Officer\, CDC\n\nOpening Remarks\n° Peter L. Saltonstall\, 
 President and Chief Executive Officer\, NORD\n \nModerator\n° Dr. Edward N
 eilan\, Chief Medical and Scientific Officer\, NORD
X-WR-RELCALID:64a30f81ae0310cc0b4fb4656e43e620
X-WR-TIMEZONE:America/New_York
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:STANDARD
TZNAME:EST
DTSTART:20201101T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20211107T020000
RDATE:20221106T020000
END:STANDARD
BEGIN:DAYLIGHT
TZNAME:EDT
DTSTART:20210314T020000
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
RDATE:20220313T020000
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BEGIN:VEVENT
UID:d50b9e1a-3724-4dc8-8560-622b0b7b62e3
DTSTAMP:20260428T013921Z
DESCRIPTION:Join the National Organization for Rare Disorders (NORD)\, alon
 g with The ALS Association\, Cystic Fibrosis Foundation and Muscular Dystr
 ophy Association to continue the conversation about vaccines during a spec
 ial webinar featuring leaders from the US Food and Drug Administration (FD
 A) and the Centers for Disease Control and Prevention (CDC). \n\nThis webi
 nar will address the:\n° Effectiveness of the vaccines for immunocompromis
 ed individuals\;\n° Timeline for vaccine authorization for children under 
 the age of 12\;\n° Future needs for booster shots or vaccine passports\, a
 nd more.\n\nQuestions from members of the rare community will be collected
  during the registration period and addressed in the discussion. For those
  unable to join on June 16\, this webinar will be recorded and sent to all
  registrants for on-demand viewing.\n\nThis webinar is intended for patien
 ts\, caregivers\, advocates and the general public.\n\nSPEAKERS\n° Dr. Jan
 et Woodcock\, Acting Commissioner\, FDA\n° Dr. Peter Marks\, Director\, Ce
 nter for Biologics Evaluation and Research\, FDA\n° Dr. Anne Schuchat\, Pr
 incipal Deputy Director\, CDC\n° Dr. Sara Oliver\, Epidemiological Intelli
 gence Service Officer\, CDC\n\nOpening Remarks\n° Peter L. Saltonstall\, P
 resident and Chief Executive Officer\, NORD\n \nModerator\n° Dr. Edward Ne
 ilan\, Chief Medical and Scientific Officer\, NORD
DTSTART;TZID=America/New_York:20210616T140000
DTEND;TZID=America/New_York:20210616T150000
LOCATION:https://event.webcasts.com/viewer/event.jsp?ei=1468754&tp_key=99d3
 6df2a2
SUMMARY:Continuing the Conversation: FDA and CDC Leaders Discuss the COVID-
 19 Pandemic\, Vaccines\, and Special Considerations for the Rare Disease C
 ommunity
END:VEVENT
END:VCALENDAR