BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//www.barthsyndrome.org//NONSGML kigkonsult.se iCalcreator 2.30.10/
 /
CALSCALE:GREGORIAN
METHOD:PUBLISH
UID:5284d28d-2bda-4447-84d6-5781c12c0a19
X-WR-CALDESC:Join us for a conversation with authors Kara and Evren Ayik.  
 Together\, Kara and her son Evren wrote a lovely children's book 'Extraord
 inary' to uplift children with rare diseases.  Kara\, has been an educator
  for over twenty years and believes that children must cultivate true self
 -worth and values to help them navigate their journeys through life. Her g
 reatest joy and proudest accomplishment have been raising her two sons\, E
 vren and Erol. Above all\, Evren and Kara seek to promote compassion and r
 espect for children with rare diseases and special needs.\n\nEvren’s advoc
 acy work for people with ASMD began in 2017 when he was invited to speak a
 t the FDA in Maryland. He went on to speak to audiences in several other s
 tates about life with ASMD to raise awareness of and support for treatment
 s for rare diseases. In 2019\, he earned the rank of Eagle Scout and was a
  California Boy’s State delegate in Sacramento. Evren is also the winner o
 f the prestigious TORCH Award for rare disease advocacy from Sanofi Genzym
 e. He plans to become a special education teacher and now attends Californ
 ia State University\, Fresno. \n\nThere is no cost to attend this event bu
 t registration is required
X-WR-RELCALID:6464daae5fcd43494501326f39ff4e46
X-WR-TIMEZONE:America/New_York
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:STANDARD
TZNAME:EST
DTSTART:20201101T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20211107T020000
RDATE:20221106T020000
END:STANDARD
BEGIN:DAYLIGHT
TZNAME:EDT
DTSTART:20210314T020000
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
RDATE:20220313T020000
END:DAYLIGHT
END:VTIMEZONE
BEGIN:VEVENT
UID:d7ae8b9a-bf33-429f-891e-380fb0e15d55
DTSTAMP:20260428T013733Z
DESCRIPTION:Join us for a conversation with authors Kara and Evren Ayik.  T
 ogether\, Kara and her son Evren wrote a lovely children's book 'Extraordi
 nary' to uplift children with rare diseases.  Kara\, has been an educator 
 for over twenty years and believes that children must cultivate true self-
 worth and values to help them navigate their journeys through life. Her gr
 eatest joy and proudest accomplishment have been raising her two sons\, Ev
 ren and Erol. Above all\, Evren and Kara seek to promote compassion and re
 spect for children with rare diseases and special needs.\n\nEvren’s advoca
 cy work for people with ASMD began in 2017 when he was invited to speak at
  the FDA in Maryland. He went on to speak to audiences in several other st
 ates about life with ASMD to raise awareness of and support for treatments
  for rare diseases. In 2019\, he earned the rank of Eagle Scout and was a 
 California Boy’s State delegate in Sacramento. Evren is also the winner of
  the prestigious TORCH Award for rare disease advocacy from Sanofi Genzyme
 . He plans to become a special education teacher and now attends Californi
 a State University\, Fresno. \n\nThere is no cost to attend this event but
  registration is required
DTSTART;TZID=America/New_York:20210625T120000
DTEND;TZID=America/New_York:20210625T130000
LOCATION:Call in details will be sent via email after you register for this
  event
SUMMARY:Friday Round Table:  Evren and Kara Ayik
END:VEVENT
END:VCALENDAR