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X-WR-CALDESC:Each year\, Global Genes convenes one of the world’s largest g
 atherings of rare disease patients\, caregivers\, advocates\, healthcare p
 rofessionals\, researchers\, partners and allies.\n\nJoin us for a variety
  of interactive and educational events\, meet-ups\, workshops and networki
 ng opportunities. Here you’ll have the  opportunity to connect and engage 
 with others in the rare disease community\, while experiencing the sense o
 f community and belonging we’ve missed so much. Gain insights about the la
 test in rare disease innovations\, best practices for advocating on an ind
 ividual and organizational level\, and actionable strategies you can imple
 ment immediately to accelerate change.\n\nThe 2021 RARE Patient Advocacy S
 ummit will be a virtual event happening from Monday\, September 27\, 2021 
 through Wednesday\, September 29\, 2021.\n\nFeatured Speaker: Fyodor D. Ur
 nov\, PhD\nScientific Director\, Technology and Translation\nInnovative Ge
 nomics Institute \nKeynote Address: On the Cusp of Cures — Potential\, Pra
 gmatism and Progress in Genomic Science
X-WR-RELCALID:8a017c23553460e8b1f799f3be23c2af
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DTSTART:20201101T020000
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TZOFFSETTO:-0500
RDATE:20211107T020000
RDATE:20221106T020000
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DTSTART:20210314T020000
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RDATE:20220313T020000
RDATE:20230312T020000
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BEGIN:VEVENT
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DTSTAMP:20260427T210550Z
DESCRIPTION:Each year\, Global Genes convenes one of the world’s largest ga
 therings of rare disease patients\, caregivers\, advocates\, healthcare pr
 ofessionals\, researchers\, partners and allies.\n\nJoin us for a variety 
 of interactive and educational events\, meet-ups\, workshops and networkin
 g opportunities. Here you’ll have the  opportunity to connect and engage w
 ith others in the rare disease community\, while experiencing the sense of
  community and belonging we’ve missed so much. Gain insights about the lat
 est in rare disease innovations\, best practices for advocating on an indi
 vidual and organizational level\, and actionable strategies you can implem
 ent immediately to accelerate change.\n\nThe 2021 RARE Patient Advocacy Su
 mmit will be a virtual event happening from Monday\, September 27\, 2021 t
 hrough Wednesday\, September 29\, 2021.\n\nFeatured Speaker: Fyodor D. Urn
 ov\, PhD\nScientific Director\, Technology and Translation\nInnovative Gen
 omics Institute \nKeynote Address: On the Cusp of Cures — Potential\, Prag
 matism and Progress in Genomic Science
DTSTART;TZID=America/New_York:20210927T000000
DTEND;TZID=America/New_York:20210929T235900
LOCATION:https://web.cvent.com/event/289bd182-abf4-49b0-90be-c2320566c276/s
 ummary
SUMMARY:Global Genes 2021 RARE Patient Advocacy Summit
END:VEVENT
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