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X-WR-CALDESC:Join Barth Syndrome Foundation's (BSF) biennial conference\, w
 here affected families\, research scientists\, and clinicians unite in a s
 ingular event. This multi-track meeting\, supported by BSF and our global 
 affiliates in Canada\, France\, Italy\, and the United Kingdom\, signifies
  a collective commitment to amplifying our impact.\n\nWe invite you to be 
 part of our diverse network of healthcare providers\, researchers\, caregi
 vers and affected individuals to discover the latest scientific research\,
  healthcare advancements and potential therapies surrounding Barth syndrom
 e. IRB-approved studies will be conducted on-site to capture data from aff
 ected individuals motivated to participate in healthcare advancements.\n\n
 More than a conference\, this is an opportunity to forge connections withi
 n an international\, diverse community-alleviating the isolation often exp
 erienced by individuals and caregivers affected by this rare disease. \n\n
 Save the date and join us as we come together for a transformative experie
 nce.
X-WR-RELCALID:49a2c808b2a5f91ba91492a0b9331243
X-WR-TIMEZONE:America/New_York
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TZID:America/New_York
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TZNAME:EST
DTSTART:20231105T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20241103T020000
RDATE:20251102T020000
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TZNAME:EDT
DTSTART:20240310T020000
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TZOFFSETTO:-0400
RDATE:20250309T020000
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BEGIN:VEVENT
UID:0663c204-bdaf-42a0-8b5f-7c6cbbff148b
DTSTAMP:20260425T171003Z
DESCRIPTION:Join Barth Syndrome Foundation's (BSF) biennial conference\, wh
 ere affected families\, research scientists\, and clinicians unite in a si
 ngular event. This multi-track meeting\, supported by BSF and our global a
 ffiliates in Canada\, France\, Italy\, and the United Kingdom\, signifies 
 a collective commitment to amplifying our impact.\n\nWe invite you to be p
 art of our diverse network of healthcare providers\, researchers\, caregiv
 ers and affected individuals to discover the latest scientific research\, 
 healthcare advancements and potential therapies surrounding Barth syndrome
 . IRB-approved studies will be conducted on-site to capture data from affe
 cted individuals motivated to participate in healthcare advancements.\n\nM
 ore than a conference\, this is an opportunity to forge connections within
  an international\, diverse community-alleviating the isolation often expe
 rienced by individuals and caregivers affected by this rare disease. \n\nS
 ave the date and join us as we come together for a transformative experien
 ce.
DTSTART;TZID=America/New_York:20240729T060000
DTEND;TZID=America/New_York:20240803T060001
LOCATION:5001 Coconut Road\, Bonita Springs\, FL 34134 US
SUMMARY:Barth Syndrome Conference
END:VEVENT
END:VCALENDAR