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UID:c966c17b-33dc-40f6-9eba-2c217e2ce2b7
X-WR-CALDESC:Join us Friday\, October 25 at 12 PM EST for our Fourth Friday
  Roundtable featuring Dr. Aileen Kenneson\, who will share key insights fr
 om our newly published peer-reviewed journal article: The diagnostic odyss
 ey\, clinical burden\, and natural history of Barth syndrome: an analysis 
 of patient registry data. This is a fantastic opportunity to learn how you
 r contributions to the patient registry are driving groundbreaking researc
 h and deepening our understanding of Barth syndrome.\n\nPlease contact BSF
  staff for the link and passcode to join.
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DTSTART:20231105T020000
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RDATE:20241103T020000
RDATE:20251102T020000
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DTSTART:20240310T020000
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BEGIN:VEVENT
UID:35b99bdf-c944-4104-a313-a64b0732a8f2
DTSTAMP:20260425T135320Z
DESCRIPTION:Join us Friday\, October 25 at 12 PM EST for our Fourth Friday 
 Roundtable featuring Dr. Aileen Kenneson\, who will share key insights fro
 m our newly published peer-reviewed journal article: The diagnostic odysse
 y\, clinical burden\, and natural history of Barth syndrome: an analysis o
 f patient registry data. This is a fantastic opportunity to learn how your
  contributions to the patient registry are driving groundbreaking research
  and deepening our understanding of Barth syndrome.\n\nPlease contact BSF 
 staff for the link and passcode to join.
DTSTART;TZID=America/New_York:20241025T120000
DTEND;TZID=America/New_York:20241025T130000
LOCATION:https://www.barthsyndrome.org/newsevents/calendar.html/event/2024/
 10/25/1729875600/fourth-friday-round-table-with-aileen-kenneson-phd-ms/501
 800
SUMMARY:Fourth Friday Round Table with Aileen Kenneson\, PhD\, MS
END:VEVENT
END:VCALENDAR