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X-WR-CALDESC:Participating in research is just one of the many ways this co
 mmunity helps move our collective goals forward. Grab your lunch and join 
 us on Friday October 24th to learn about two new research opportunities fo
 r the Barth syndrome community: \n\n1)A research opportunity with Drs. Tan
  and Phoon from NYU Langone.\n\n2)The role of patients and advocacy in adv
 ancing research\, and the introduction of a global Phase 3 trial for the t
 reatment of chronic neutropenia with LeapCure.\n\nDisclaimer: The Barth Sy
 ndrome Foundation does not endorse any specific human subjects research st
 udies or clinical trials. This webinar is informational only and intended 
 to make the community aware of study and trial opportunities. The decision
  to participate is entirely up to the participants / their families and sh
 ould be discussed with their care providers\, when necessary.\n\nFor Zoom 
 details\, please contact Melissa.Huang@barthsyndrome.org
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DTSTART:20241103T020000
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RDATE:20251102T020000
RDATE:20261101T020000
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BEGIN:VEVENT
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DTSTAMP:20260424T163338Z
DESCRIPTION:Participating in research is just one of the many ways this com
 munity helps move our collective goals forward. Grab your lunch and join u
 s on Friday October 24th to learn about two new research opportunities for
  the Barth syndrome community: \n\n1)A research opportunity with Drs. Tan 
 and Phoon from NYU Langone.\n\n2)The role of patients and advocacy in adva
 ncing research\, and the introduction of a global Phase 3 trial for the tr
 eatment of chronic neutropenia with LeapCure.\n\nDisclaimer: The Barth Syn
 drome Foundation does not endorse any specific human subjects research stu
 dies or clinical trials. This webinar is informational only and intended t
 o make the community aware of study and trial opportunities. The decision 
 to participate is entirely up to the participants / their families and sho
 uld be discussed with their care providers\, when necessary.\n\nFor Zoom d
 etails\, please contact Melissa.Huang@barthsyndrome.org
DTSTART;TZID=America/New_York:20251024T113000
DTEND;TZID=America/New_York:20251024T130000
LOCATION:Online/Zoom
SUMMARY:Lunch & Learn: Ongoing Research Opportunities
END:VEVENT
END:VCALENDAR