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The only organization dedicated to saving lives around the world through education, advances in treatments, and finding a cure for Barth syndrome: a life-threatening genetic, multi-system disorder mostly affecting males.

February 20, 2025
byBarth Syndrome Foundation

Dr. Simon J Conway, PhD is a Professor in the Herman B Wells Center for Pediatric Research at Indiana University School of Medicine, Indianapolis.

January 24, 2025
byBarth Syndrome Foundation

The date by which FDA will let Stealth know whether they will approve elamipretide (the “PDUFA date”) has been delayed by three months. We had expected to know FDA’s decision by January 29 but now have learned that the new date is April 29, 2025.

  • Barth Syndrome Foundation Family Services is a caring community offering vital information and credible resources.

  • Barth Syndrome Foundation is the worldwide hub of medical knowledge about Barth syndrome and encourages its progress.

  • Barth Syndrome Foundation is a global facilitator for advancing understanding of and developing treatments for Barth syndrome.

  • Keep up-to-date on the Barth Syndrome Foundation's latest news.

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