The only organization dedicated to saving lives around the world through education, advances in treatments, and finding a cure for Barth syndrome: a life-threatening genetic, multi-system disorder mostly affecting males.
This is our impact.
Impact information in the right content space. We exist to raise awareness for our cause and bring change to the lives of those we serve in our community. With your help we can make a difference. Learn more and get involved.
-
People Helped1,000
-
250Volunteer Hours
-
$10,000Dollars Raised
-
1,000Program Participants
-
Barth Syndrome Foundation Family Services is a caring community offering vital information and credible resources.
-
Barth Syndrome Foundation is the worldwide hub of medical knowledge about Barth syndrome and encourages its progress.
-
Barth Syndrome Foundation is a global facilitator for advancing understanding of and developing treatments for Barth syndrome.
News & Events
The Barth Syndrome Foundation (BSF) extends our sincere appreciation to FDA leadership for meeting with our community last week and hearing firsthand the devastating reality of a Barth syndrome diagnosis.
The Barth Syndrome Foundation (BSF) acknowledges Stealth BioTherapeutics’ (Stealth) announcement today that it has resubmitted its third New Drug Application (NDA) for elamipretide, the only therapy in late-stage development for Barth syndrome, a devastating, ultra-rare, mitochondrial disease.
