OUR MISSION

To collectively and tenaciously work toward saving and improving the lives of those impacted by Barth syndrome

OUR VISION

A world in which everyone impacted by Barth syndrome can thrive and live the life they choose

WE NEED YOUR HELP

Since 2000, BSF has been a lifeline for those who suffer from Barth syndrome, offering 24/7 support, pioneering standards of care and diagnosis, creating collaborations between clinicians, researchers and patients, and most importantly, making sure no person with Barth syndrome is ever alone.