OUR MISSION
Saving lives through education, advances in treatment, and finding a cure for Barth syndrome.
OUR VISION
A world in which Barth syndrome no longer causes suffering or loss of life.
WE NEED YOUR HELP
Since 2000, BSF has been a lifeline for those who suffer from Barth syndrome, offering 24/7 support, pioneering standards of care and diagnosis, creating collaborations between clinicians, researchers and patients, and most importantly, making sure no person with Barth syndrome is ever alone.
RESTRICTED PROGRAM FUNDS
FUNDRAISING EVENTS
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Address to send donations by mail:
Barth Syndrome Foundation, PO Box 419264
Boston, MA 02241-9264
