The Barth Syndrome Foundation is a truly international organization that supports families living in any country, knowing as we do that it is only through this unified approach that we can succeed in achieving our vision. Together, we continue to generate a positive force to ensure that...Barth syndrome no longer causes suffering or loss of life.

Barth Syndrome UK

Charity #: 1181830
Primary Contact: Michaela Damin, Chief Executive
Email: michaela.damin@barthsyndrome.org.uk
1 The Vikings 
Romsey 
Hampshire 
S051 5RG 
United Kingdom 
Telephone: +44 1794 518 785 
Email: Contact Us
Website: www.barthsyndrome.org.uk
Facebook: https://www.facebook.com/barthsyndrome/
 

NHS National Barth Syndrome Service: Barth Syndrome Clinics

Barth Syndrome Foundation of Canada

Charity #: 86102 2002 RR0001​
Primary Contact: Susan Hone, President
162 Guelph Street, Suite 115
Georgetown, ON L7G 5X7
Canada 
Email: Contact Us
Website: www.barthsyndrome.ca
Facebook: https://www.facebook.com/barthsyndromecanada/

Association Syndrome de Barth France

Charity #: 533 127 759 
Primary Contact: Florence Mannes
Email: florence@barthfrance.com
13 rue de la Terrasse
92150 Suresnes
France
Telephone: +33 6 15 58 02 32
Email: Contact Us
Website: https://www.syndromedebarth.fr/
Facebook: https://www.facebook.com/syndromedebarth/
Twitter: @BarthFrance

Barth Italia Onlus

Primary Contact: Paola Cazzaniga
Email: Info@barthitalia.org
Piazza Carrobiolo 5
20900 Monza
Italy
Telephone: +390392023777
Email: Contact Us
Website: https://www.barthitalia.org
Facebook: https://www.facebook.com/Barth-Italia-481209832051117/