Skip to main content

Connect with Community

Sign up for E-News

Let’s stay in touch. Sign up for E-News and we will keep you up-to-date on all things the Barth Syndrome Foundation (BSF) is doing. We promise never to share your e-mail address with others.


Social Media

You can also keep up with the BSF, Barth syndrome news, BSF programs and more by finding us on your favorite social networks:


Healthcare Providers and Researchers

SciMed ListservThe SciMed Listserv is a forum where members of our international Scientific and Medical Advisory Board, clinicians and researchers collaborate, ask questions and exchange the latest information pertaining to research and care for the Barth syndrome patient.

Please contact us for more information on how to join our Listserv.


Community Calendar

Find out what's happening in BSF's community!


Powered by Firespring