We appreciate your interest in the Barth Syndrome Foundation, and your feedback is important to us. Please consult the following list so that your feedback and questions can be directed to the appropriate person.

Barth Syndrome Foundation

2005 Palmer Avenue #1033
Larchmont, NY  10538
Toll Free: 855-662-2784 or 855-NO-BARTH
Local Line: 914-303-6323

Family Services & Advocacy

Shelley Bowen
Director, Family Services & Advovacy
Telephone: 855-662-2784 or 855-NO-BARTH (Ext. 701)
Email: Contact Us 

Research & Development

Lindsay Marjoram, PhD
Director of Research
Telephone: 855-662-2784 or 855-NO-BARTH
Email: Contact Us 

General Inquiries / Publications

Telephone: 855-662-2784 or 855-NO-BARTH (Ext. 703)
Email: Contact Us

International Affiliates

(Click link to view listing of BSF affiliates)