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Leadership & Staff

Board of Directors

Our Board of Directors is responsible for overseeing the mission and purpose of the organization. Its duties include participation in strategic planning and making policy decisions, then securing the financing of them and the monitoring of their execution. Meet our Board of Directors »

Executive Committee

The Executive Committee of the Board of Directors shall be comprised of the Chairman, Treasurer, Secretary, and the Executive Director (non-voting ex-officio). The Executive Committee may also include the Board liaison representing families and the Board liaison representing science/medicine. The minimum number of members present to form a quorum is 2/3 of the voting members. Meet our Executive Committee »


Our talented staff works with dedication and urgency to advance the Foundation´s mission and make a difference in the lives of those affected by Barth syndrome. Meet our Staff »


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