You’ll always know what’s going on with our organization.
Just bookmark this page and check back often for the latest programs and events.
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5:00 pm
Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
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5:00 pm
Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
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12:00 pm
Fourth Friday Round Table
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Thursday, November 13, 2025
Thursday, November 27, 2025
Friday, November 28, 2025
