Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners and allies.

Join us for a variety of interactive and educational events, meet-ups, workshops and networking opportunities. Here you’ll have the opportunity to connect and engage with others in the rare disease community, while experiencing the sense of community and belonging we’ve missed so much. Gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies you can implement immediately to accelerate change.

The 2021 RARE Patient Advocacy Summit will be a virtual event happening from Monday, September 27, 2021 through Wednesday, September 29, 2021.

Featured Speaker: Fyodor D. Urnov, PhD
Scientific Director, Technology and Translation
Innovative Genomics Institute
Keynote Address: On the Cusp of Cures — Potential, Pragmatism and Progress in Genomic Science