Barth Syndrome Foundation, Sudden Arrhythmia Death Syndromes (SADS) Foundation, Children's Cardiomyopathy Foundation and National Neutropenia Network are now a part of Project Sunshine Teleplay. This is open to individuals diagnosed with Barth syndrome and their siblings and young immediate relatives.

This will provide our youth (5 - 18 years old) with an opportunity to bond with others who are in a similar circumstance through fun.
Our monthly gatherings take place on the 3rd Friday of every month.

Zoom Link: https://bit.ly/3oDayrf
Password: sunshine