This Biannual Research Update is exclusively for adults who have a diagnosis of Barth syndrome. BSF Director of Research and Development. This is a time to learn about the research that is being conducted to benefit those who have Barth syndrome. If you have questions that you would like to submit in advance, please do so through BSF internal communication channels. If you are new to BSF reach out to Shelley Bowen for more information. This biannual meeting is in place of the regularly scheduled bi-weekly meetup calls with Iyar Mazar and Jon Stokes.