Fifth Friday Research Series
Details to join:
May 31, 2024 | 12pm ET
https://barthsyndrome.zoom.us/j/99700561098
Meeting ID: 997 0056 1098
Passcode: Research
Read about her research here: https://www.barthsyndrome.org/barthsyndrome/familyresources/research-summaries/impact-of-raising-children-with-barth-syndrome-on-parental-health-related-quality-of-life-and-family-functioning.html