3 easy steps! This is critical for all US families to do ASAP for elamipretide to be available.
Step 1: Fill out this form.
Step 2: Attend these meetings to prepare:
Session 1, August 17th, 12pm EST (recorded so you can watch later)
Session 2, August 25th, 12pm EST (recorded so you can watch later)
Session 3, September 1st, 12pm EST (interactive prep meeting - most important!)
Click here for link to all Zoom sessions | Passcode: BSFMeeting
Step 3: Attend virtual meeting with your legislator. Shelley will schedule your meeting and attend it with you. All you need to do is share you 2-3 minutes of your Barth story. That's it!
Questions? Contact Shelley Bowen: shelley.bowen@barthsyndrome.org
