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Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)

Thursday, June 29, 2023
5:00 pm6:00 pm

Online meet-ups are a great opportunity for teens and adults diagnosed with Barth syndrome to connect with one another. Join us for a lively, agenda free conversation.

Adult Meetup Moderators: Iyar Mazar and Jonathan Stokes
Fourth Thursday Research Updates*: Erik Lontok

Meeting ID: 920 5742 5911
Request meeting password through email below or visit the Barth syndrome family chat page on Facebook

Erik Lontok will meet with this group on a quarterly basis (every twelfth Thursday). Announcements made through internal BSF channels. Contact us if you are interested in attending these meetings.

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