Participating in research is just one of the many ways this community helps move our collective goals forward. Grab your lunch and join us on Friday October 24th to learn about two new research opportunities for the Barth syndrome community:

1)A research opportunity with Drs. Tan and Phoon from NYU Langone.

2)The role of patients and advocacy in advancing research, and the introduction of a global Phase 3 trial for the treatment of chronic neutropenia with LeapCure.

Disclaimer: The Barth Syndrome Foundation does not endorse any specific human subjects research studies or clinical trials. This webinar is informational only and intended to make the community aware of study and trial opportunities. The decision to participate is entirely up to the participants / their families and should be discussed with their care providers, when necessary.

For Zoom details, please contact Melissa.Huang@barthsyndrome.org