OUR FAMILIES ARE COUNTING ON YOU!
OUR MISSION
Saving lives through education, advances in treatment, and finding a cure for Barth syndrome.
OUR VISION
A world in which Barth syndrome no longer causes suffering or loss of life.
WE NEED YOUR HELP
Since 2000, BSF has been a lifeline for those who suffer from Barth syndrome, offering 24/7 support, pioneering standards of care and diagnosis, creating collaborations between clinicians, researchers and patients, and most importantly, making sure no person with Barth syndrome is ever alone.
