Calendar : News & Events : Barth Syndrome Foundation

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August 2021

This Month

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Aug 1	2	3	4	5	6	7
		6:00 pm How to Effectively Partner with a Genetic Counselor to Accelerate Your Rare Diagnosis	10:30 am CORONA YOGA (ALL LEVELS YOGA)	10:30 am Corona Yoga (All Levels Yoga)
				5:00 pm Meetup for Siblings (5 - 18 years old)

8	9	10	11	12	13	14
			10:30 am CORONA YOGA (ALL LEVELS YOGA)	10:30 am Corona Yoga (All Levels Yoga)
			6:00 pm PDT Rare Mother Meetup	2:00 pm Genetic Counseling for Rare and Undiagnosed Conditions: What Is it, Do I Need It and How Can I Find It?
				5:00 pm Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
				5:00 pm Meetup for Affected Individuals (5 - 18 years old)

15	16	17	18	19	20	21
		6:00 pm Diagnosis or No Diagnosis - What's Next? Finding Your Way Through Genetic Testing to a Diagnosis	10:30 am CORONA YOGA (ALL LEVELS YOGA)	10:30 am Corona Yoga (All Levels Yoga)
		6:00 pm The Role of Research in Improving Care for Patients with Pediatric Cardiomyopathy	6:00 pm The Latest in DCM Genetics Research & Therapies in Development

22	23	24	25	26	27	28
			World Orphan Drug Congress USA 2021
			10:30 am CORONA YOGA (ALL LEVELS YOGA)	10:30 am Corona Yoga (All Levels Yoga)	ESC Congress 2021 - The Digital Experience
				5:00 pm Meetup for Siblings and Affected Individuals (5 - 18 years old)	12:00 pm Fourth Friday Round Table
				5:00 pm Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)

29	30	Aug 31	Sep 1	2	3	4
ESC Congress 2021 - The Digital Experience		6:00 pm Making Decisions about Genetic Testing, Gene Therapy, and Clinical Trials - Weighing the Options

How to Effectively Partner with a Genetic Counselor to Accelerate Your Rare Diagnosis

6:00 pm - 7:30 pm

CORONA YOGA (ALL LEVELS YOGA)

10:30 am - 11:30 am

Corona Yoga (All Levels Yoga)

10:30 am - 11:30 am
Genetic Counseling for Rare and Undiagnosed Conditions: What Is it, Do I Need It and How Can I Find It?

2:00 pm - 3:00 pm
Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)

5:00 pm - 6:00 pm
Meetup for Affected Individuals (5 - 18 years old)

5:00 pm - 6:00 pm

Corona Yoga (All Levels Yoga)

10:30 am - 11:30 am

ESC Congress 2021 - The Digital Experience (Day 2 of 4 )

All Day

ESC Congress 2021 - The Digital Experience (Day 3 of 4 )

All Day

ESC Congress 2021 - The Digital Experience (Day 4 of 4 )

All Day

Making Decisions about Genetic Testing, Gene Therapy, and Clinical Trials - Weighing the Options

6:00 pm - 7:30 pm

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