You’ll always know what’s going on with our organization.
Just bookmark this page and check back often for the latest programs and events.
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| 27 | 28 | 29 | 30 | Mar 31 | Apr 1 | 2 |
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| 3 | 4 | 5 | 6 | 7 | 8 | 9 |
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5:00 pm
Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
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2:00 pm
Barth Global Meetup
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7:30 pm
Rare Teleplay for youth 5 - 18 Years of Age
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| 10 | 11 | 12 | 13 | 14 | 15 | 16 |
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7:30 pm
Youth ICD Support Group
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8:00 pm
Barth Syndrome Transplant Families Virtual Meetup
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| 17 | 18 | 19 | 20 | 21 | 22 | 23 |
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5:00 pm
Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
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12:00 pm
Fourth Friday Round Table
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| 24 | 25 | 26 | 27 | 28 | 29 | Apr 30 |
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Pediatric Transplant Conference (Transplant Families)
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12:00 pm
Fifth Friday Research Update
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Thursday, April 7, 2022
Friday, April 8, 2022
Tuesday, April 12, 2022
Thursday, April 14, 2022
Thursday, April 21, 2022
Friday, April 22, 2022
Thursday, April 28, 2022
Friday, April 29, 2022
Saturday, April 30, 2022
