You’ll always know what’s going on with our organization.
Just bookmark this page and check back often for the latest programs and events.
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| 8 | 9 | 10 | 11 | 12 | 13 | 14 |
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10:00 am
Happy Heart Week
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Seattle Virtual Rare Disease Fair
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| 15 | 16 | 17 | 18 | 19 | 20 | 21 |
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10:00 am
Happy Heart Week
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5:00 pm
Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
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7:30 pm
Rare Teleplay for youth 5 - 18 Years of Age
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| 22 | 23 | 24 | 25 | 26 | 27 | 28 |
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12:00 pm
Fourth Friday Round Table
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| 29 | 30 | May 31 | Jun 1 | 2 | 3 | 4 |
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Thursday, May 5, 2022
Monday, May 9, 2022
Tuesday, May 10, 2022
Wednesday, May 11, 2022
Thursday, May 12, 2022
Friday, May 13, 2022
Saturday, May 14, 2022
Sunday, May 15, 2022
Thursday, May 19, 2022
Friday, May 20, 2022
Friday, May 27, 2022
