You’ll always know what’s going on with our organization.
Just bookmark this page and check back often for the latest programs and events.
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| 25 | 26 | 27 | 28 | 29 | Jun 30 | Jul 1 |
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| 2 | 3 | 4 | 5 | 6 | 7 | 8 |
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Stronger Together World Tour (Fitchburg, MA)
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| 9 | 10 | 11 | 12 | 13 | 14 | 15 |
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Stronger Together World Tour (Fitchburg, MA)
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5:00 pm
Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
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| 16 | 17 | 18 | 19 | 20 | 21 | 22 |
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7:30 pm
Rare Teleplay for youth 5 - 18 Years of Age
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| 23 | 24 | 25 | 26 | 27 | 28 | 29 |
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5:00 pm
Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
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12:00 pm
Fourth Friday Round Table | Neutropenia Medications with David Frame, PharmD
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| 30 | Jul 31 | Aug 1 | 2 | 3 | 4 | 5 |
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Friday, July 7, 2023
Saturday, July 8, 2023
Sunday, July 9, 2023
Thursday, July 13, 2023
Friday, July 21, 2023
Thursday, July 27, 2023
Friday, July 28, 2023
