You’ll always know what’s going on with our organization.
Just bookmark this page and check back often for the latest programs and events.
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| 30 | Jul 31 | Aug 1 | 2 | 3 | 4 | 5 |
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| 13 | 14 | 15 | 16 | 17 | 18 | 19 |
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12:00 pm
SPECIAL MEETING on Elamipretide
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7:30 pm
Rare Teleplay for youth 5 - 18 Years of Age
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| 20 | 21 | 22 | 23 | 24 | 25 | 26 |
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5:00 pm
Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
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12:00 pm
Fourth Friday Round Table
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12:00 pm
Advocacy in Action: Why You Matter
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| 27 | 28 | 29 | 30 | Aug 31 | Sep 1 | 2 |
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Thursday, August 10, 2023
Thursday, August 17, 2023
Friday, August 18, 2023
Thursday, August 24, 2023
Friday, August 25, 2023
