You’ll always know what’s going on with our organization.
Just bookmark this page and check back often for the latest programs and events.
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5:00 pm
Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
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12:00 pm
Fourth Friday Round Table
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| 27 | 28 | 29 | 30 | Jul 31 | Aug 1 | 2 |
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Thursday, July 10, 2025
Thursday, July 24, 2025
Friday, July 25, 2025
