Talk Title: Participation of Individuals with Barth Syndrome in Everyday Activities across Home, School, and Community

Join us tomorrow, Friday, April 25 at 12:00 PM ET as we welcome Dr. Yoonjeong Lim, PhD, OTR/L, for our Friday Research Roundtable. Dr. Lim is an assistant professor in the Division of Occupational Therapy at Binghamton University in Binghamton, NY and a licensed pediatric occupational therapist. Her previous work explored the impact of raising children with rare diseases, including Barth syndrome. In this talk, she’ll share findings from her latest research, which focuses on enhancing the quality of life for individuals with rare diseases by supporting their participation in meaningful daily activities.

Please email Melissa.Huang@barthsyndrome.org for a link and passcode to the Zoom meeting.