Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
Online meet-ups are a great opportunity for teens and adults diagnosed with Barth syndrome to connect with one another. Join us for a lively, agenda free conversation.
Adult Meetup Moderators: Iyar Mazar and Jonathan Stokes
Meeting ID: 920 5742 5911
Request meeting password through email below or visit the Barth syndrome family chat page on Facebook
Lindsay Marjoram, PhD and Melissa Huang, PhD, will meet with this group every six months. Announcements made through internal BSF channels. Contact us if you are interested in attending these meetings.
