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Stronger Together World Tour


We are excited to bring you the 2023 Stronger Together World Tour! Much like the 2022 tour, we are hosting regional gatherings across the world! Barth families will unite to build and strengthen relationships through a shared experience of learning and camaraderie. We are creating opportunities to fortify the relationships between families so they can support each other across the journey of living with or caring for someone with Barth syndrome.

US Stop

Gurnee, IL  Friday, June 23 – Sunday, June 25, 2023


Reach out to a local BSF affiliate or regional ambassador to learn more about opportunities in your area.

Waterloo, Ontario, Canada July 21 - 23, 2023 | Contact Susan Hone (

Bristol, United Kingdom April 14, 2023  | Contact Michaela Damin (

Helvoirt, Netherlands May 7, 2023 | Contact Peter van Loo (



The centerpiece attraction at every Great Wolf Lodge is the expansive indoor water park, designed with many water slides, pools, and play areas for families to enjoy together.

The family-fun extends beyond the water park. Kids love MagiQuest, the brand’s exclusive mystical interactive adventure game. Other exhilarating attractions include a ropes course, arcade games, and miniature golf.

Group Rates will be available for rooms on Thursday and Sunday nights on a limited basis.  Late check-outs will be available at a discounted rate. 

BSF will provide Group Rate Discount Codes for each location once the Great Wolf reservation websites open.  Room reservations for all locations will need to be made no less than 2 weeks prior to the location event. 

As we did in 2022, BSF will sponsor Friday dinner, Saturday breakfast, lunch and dinner, and Sunday breakfast. 

BSF will also sponsor Great Wolf attraction passes, appropriate for children ages 4 to 14.  Offsite events will be considered for older attendees. 

Saturday morning educational sessions will focus on empowering families to be advocates for access to crucial treatments for Barth syndrome and learn ways our community can drive impact in research.  

Gurnee, IL Fitchburg, MA Scottsdale, AZ LaGrange, GA
June 23-25 July 7 – 9 September 15 – 17 September 22 – 24
$260/night $240 / night $230 / night $230 / night


Want to attend #STWT but finances are tight? You may be eligible for the National Organization for Rare Disorders (NORD), Rare Disease Educational Support Program. These funds are subject to availability and you must contact NORD before booking your hotel/travel, so don't wait to apply. For more information contact or 860.556.2208.


If you would like to support the 2023 Stronger Together World Tour, consider making a donation today. Your dollars will help bring together affected individuals and their families to develop and strengthen bonds to support living with Barth syndrome. 

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