Join us Friday, October 25 at 12 PM EST for our Fourth Friday Roundtable featuring Dr. Aileen Kenneson, who will share key insights from our newly published peer-reviewed journal article: The diagnostic odyssey, clinical burden, and natural history of Barth syndrome: an analysis of patient registry data. This is a fantastic opportunity to learn how your contributions to the patient registry are driving groundbreaking research and deepening our understanding of Barth syndrome.

Please contact BSF staff for the link and passcode to join.