The magnetism of someone who has Barth syndrome is undeniable.  If you know or have met someone who has Barth syndrome, you know how incredibly special they are. Although Barth syndrome causes them to endure many debilitating conditions such as heart disease, arrhythmias, neutropenia, and extreme fatigue, these extraordinary individuals are recognized for their intelligence, wit, and gentle nature.

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Last updated 2/26/2021