If you or your child is 12 years of age or older and has Barth syndrome, and you are interested in learning about a research study about an investigational treatment for Barth syndrome, please contact Dr. Hilary Vernon, MD PhD via e-mail at hvernon1@jhmi.edu or at her office at 410-502-8625. https://clinicaltrials.gov/ct2/show/NCT03098797
